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18 days ago

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Struggling with meltdowns…

My mama heart is hurting today… my little one (3.5yo) is struggling, and the struggle is getting harder. She has been diagnosed with CP & anxiety disorder and flagged for ASD and ADHD. It’s like she is “fine” at therapy/appointments, at the grandparents etc… and then she gets home, and her whole world crumbles. Home is her happy place. We recently went on our first family holiday (2 nights so as to not overwhelm her)… I prepped her with a social story, and all the details. We took her creature comforts with us. But when it came time for bed, she just couldn’t do it. “It wasn’t right”she couldn’t deal, melt down… so we had to make a little nest on the floor for her. She had TheraDance yesterday morning, and she was so happy! A little bundle of energy… just non stop!! But as soon as we got home… she dissolved. I’m guessing it was a lot of sensory overload?? Noise, light… And needing to listen and follow instructions… waiting her turn.. etc.? She’s having so many BIG emotions, struggling with sleep. Dad and I are at a loss… Nan had never seen her melt down, she herself cried. We feel helpless. She goes from zero to 100 - out of control, screaming in a second. After giving her space for a while yesterdays … she eventually calmed down enough to ask for her weighted blanket and pillow to lie on the floor. Lights off, with Mama and Nan. This journey is so heavy on the heart. I wish I could do more. I wish I could “see more” before it gets too much for her… And tips guys? TIA 💗
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17 days ago

So much going on and a lot to work through. Is the therapy team working on socialising, too much right now? Will working on her recognising and being able to have her sensory needs met first, be more helpful. It would be hard to socialise when it may be overstimulating and therefore not pleasant. There is an audio room on tomorrow called Accessing Reasonable Adjustments where we go through the things that the school and the teachers can do to support and create an environment for your child to be successful. Taking into account there sensory needs and how they learn. There was some great conversations and info shared in the call on the same subject last Thursday night that makes me think it could be very helpful for you

17 days ago

That is so hard for all of you, I'm wondering if they have done a sensory profile yet to help identify what is happening for her? Sending you courage and strength xx

17 days ago

I feel for you as l totally get this. My daughters sage space is home also, she is fantastic at masking behaviours and acting how she is ‘supposed’ to act. So when it’s home time she is mentally drained. My daughter has cerebral palsy too so it must be so draining for them both mentally and physically. My daughter is 7 now and although it’s still so hard l think it becomes a little bit more predictable and l giess the heart doesn’t feel quite as heavy as it becomes the norm. Now that my daughter is older l am noticing a few occasions where she is able to find words or an activity to regulate sometimes, so all the years of therapy are definitely helpful. But yes it’s crazy hard xoxo

17 days ago

Gosh I feel you. Our daughter is nearly 5 (CP/ASD) has days like this where she just cries all day. Everything is just hard for her and the only way to console her is to sit in bed with her and just cuddle with her favourite toy and blanket. I feel it's developmental leaps sometimes, other times it's changes to routine, other days I have no damn idea and I just want to cry with her. STAY STRONG MUMMA YOU CAN DO THIS.

18 days ago

Struggling with meltdowns…
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