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Here’s what parents are talking about on Kindship.

20 days ago

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BillShorten Kindship NDIS interview

Linda Fenech is our head of advocacy at #kindship and has helped us secure a FB Live interview with Bill Shorten (Shadow NDIS Minister) for next Monday at 1pm 😲 This is a really big deal! Particularly because we aren't media, but we ARE a large group of parents who want to know where to cast our votes in 17 days time!! I'm also trying to secure a time slot with the current NDIS Minister Linda Reynolds, so we can give a balanced perspective of both sides. I'd like to provide some overarching questions to both Ministers... So what would you like to ask?! What do you want to know about the future of the NDIS? What information would help you decide on where to cast your vote? Keep in mind, they wont be able to answer questions about individual situations, but they can give more big picture things. We can also take some questions live, so make sure you put this in your diaries and share it once we have the post ready to go!
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20 days ago

1) An NDIS approval tick box for *functional impairment(S)* to cover those still on diagnostic journeys. Many families cannot access specialists for a formal diagnosis due to unavailability. Others have genetic mutations or syndromes that are rare and difficult to diagnose. Not all are identifiable with genetic testing. Regardless, individuals can have a number of functional impairments that require early intervention and various therapies to support their development. Over the past years, functional impairments has disappeared from NDIS as a consideration despite carrying even greater weight for disability in the new DSM-5-TR publication. Many NDIS clients with significant functional impairments, relying on therapy, have been removed from the program at ages 6-7 as a result. 2) Greater weight placed on funding recommendations by therapy providers currently working with NDIS clients — not departmental therapists/assessors unfamiliar with individuals/families. 3) Restructuring the system on their end so that NDIS staff may easily find supporting documents. Necessary devices and therapies are being denied only to find out months later, with appeals or reviews, that the NDIS assessor did not find the supporting documentation on the system and then found it somewhere else on the computer system, therefore the approvals are unnecessarily being delayed. Some families are unaware that the required documents were not reviewed or considered and are being discouraged in pursuing a decision review. These changes should cover the current issues with approval difficulties and underfunding plans. I would like to know what both will personally do to ensure these necessary changes are implemented and actioned as soon as possible.

19 days ago

great questions!!

19 days ago

This is fantastic. Thanks ladies. For people like me who get confused with the next Monday but - are we talking about the 9th or 16th May? I’d like to block out my work diary for this. Thanks 😊

18 days ago

Staffing caps within the organisation - my wish is that they stop contracting out so many jobs, like the LAC’s. I feel it ends up leading to inconsistent plans & information the participants receive. Also they are on contacts so the staff are on contacts which lead to staff not being passionate about their jobs due to the lack of stability.

20 days ago

This is amazing!

20 days ago

BillShorten Kindship NDIS interview
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