Carer statement

Think of a carer's statement as your way of giving the NDIS a glimpse into the life of the person you're caring for, much like telling a friend a heartfelt story about someone you deeply care about. It's all about sharing their daily challenges, their dreams, and the support they need to lead a better life.

In this statement, you get to talk about how the disability affects not just the person who has it but also everyone who cares for them. It's like painting a detailed picture of the challenges, the things that make life a bit more complex, and the help needed for daily life. The National Disability Insurance Agency (NDIA) uses this statement to understand how much support is necessary.

While it's not mandatory, adding a Carer's Statement helps show a clear picture of how the disability impacts both the person with the disability and those who care for them. It's your chance to explain how the disability affects your life and family. You can also describe the unique care needs which differ from a child without a disability.

Here are some things to make sure you include in your carer statement;

1. Introduction:

• Your name and your relationship to the person with a disability (e.g., parent, sibling, guardian).
• A brief overview of your caregiving role and responsibilities.

2. Personal Story:

• Share your personal journey as a carer, including when you started caring for the individual with a disability.
• Highlight any challenges and successes you've experienced.

3. Impact of Disability:

• Describe the specific disability or condition the person has and how it affects their daily life.
• Explain how the disability impacts your life, family dynamics, and everyday routine.

4. Demands and Complexities:

• Detail the demands and complexities of caregiving, such as medical care, emotional support, and any unique needs.
• Discuss the challenges and stressors you face as a carer.

5. Support Requirements:

• Clearly state the type of support and assistance needed to help care for the individual with a disability.
• Include any specific therapies, equipment, or services required.

6. Daily Living:

• Describe how the disability affects daily living activities, such as personal care, mobility, communication, and social interaction.
• Share any improvements or regressions in the individual's capabilities.

7. Comparison to Peers:

• Explain how the care needs of the individual with a disability differ from those of a similar-aged child without a disability.

8. Future Outlook:

• Discuss the long-term impact of the disability on both the individual and your caregiving role.
• Include any goals or aspirations for the individual's future.

9. Emotional and Psychological Impact:

• Share your feelings, emotions, and the psychological toll of caregiving. Be honest about the emotional challenges.

10. Any Additional Information:

• Include any other relevant information or exceptional circumstances that affect your caregiving role and the needs of the individual with a disability.

11. Personal Language:

• Write in a personal and honest tone. Avoid jargon and use your own words to convey your experiences.

12. Raw and Intimate Details:

• Don't shy away from sharing the more challenging and personal aspects of your caregiving journey.

13. Sign and Date:

• Remember to sign and date the statement to make it official.

Creating a comprehensive Carer's Statement helps the National Disability Insurance Agency (NDIA) understand your unique situation and needs, which can impact the support and funding provided. It's a chance to tell your story and ensure that you and the person you care for receive the necessary assistance and recognition.